Wellness registry
The present disclosure relates to receiving and sharing wellness data. The wellness data can be received by a user device from any number of sensors external or internal to the user device, from a user manually entering the wellness data, or from other users or entities. The user device can securely store the wellness data on the user device and transmit the wellness data to be stored on a remote database. A user of the device can share some or all of the wellness data with research entities conducting research studies, friends, relatives, caregivers, healthcare providers, or the like.
1. A computer-implemented method comprising:
at a registry server independent of a research entity:
receiving a data sharing authorization from at least one of a plurality of user devices, wherein the data sharing authorization provides access to a user's personal non-wellness data and the user's personal wellness data collected by at least one of a user's smart phone or a user's wearable device, the data sharing authorization providing authorization to at least one research entity for accessing the user's personal non-wellness and the user's personal wellness data;
in response to receiving the data sharing authorization, receiving from at least one of the plurality of user devices, the user's personal non-wellness data and the user's personal wellness data;
storing the wellness and non-wellness data received from at least one of the plurality of user devices in a registry database;
receiving updates from at least one of the plurality of user devices to update at least one of non-wellness and the wellness data corresponding to the at least one of the plurality of user devices;
receiving from the at least one research entity, a request to access the registry database;
receiving, from the at least one research entity, a request to perform a search query on the registry database for at least a portion of the stored non-wellness and wellness data;
performing the search query according to search query rules;
determining whether a user's identity can be determined or inferred from the search query;
in accordance with a determination that a user's identity can be determined or inferred from the search query, rejecting the search query; and
in accordance with a determination that the search query is approved, transmitting results of the search query to the research entity.
2. The computer-implemented method of claim 1 , wherein the user's personal non-wellness data and the user's personal wellness data is received from a wellness database located on the at least one of a plurality of user devices.
3. The computer-implemented method of claim 2 , further comprising updating the registry database by receiving one of intermittent and continuous updates from the wellness database located on the at least one of a plurality of user devices.
4. The computer-implemented method of claim 1 , wherein the registry database comprises metadata associated with the wellness and the non-wellness data, wherein the metadata comprises a time the wellness and the non-wellness data was recorded, a type of the wellness and the non-wellness data, and a device used to record the wellness and the non-wellness data.
5. The computer-implemented method of claim 1 wherein the wellness and the non-wellness data is stored in the registry database anonymously.
6. A non-transitory computer-readable storage medium storing one or more programs configured to be executed by one or more processors, the one or more programs including instructions for:
at a registry server independent of a research entity:
receiving a data sharing authorization from at least one of a plurality of user devices, wherein the data sharing authorization provides access to a user's personal non-wellness data and the user's personal wellness data collected by at least one of a user's smart phone or a user's wearable device, the data sharing authorization providing authorization to at least one research entity for accessing the user's personal non-wellness and the user's personal wellness data;
in response to receiving the data sharing authorization, receiving from at least one of the plurality of user devices, the user's personal non-wellness data and the user's personal wellness data;
storing the wellness and non-wellness data received from at least one of the plurality of user devices in a registry database;
receiving updates from at least one of the plurality of user devices to update at least one of non-wellness and the wellness data corresponding to the at least one of the plurality of user devices;
receiving from the at least one research entity, a request to access the registry database;
receiving, from the at least one research entity, a request to perform a search query on the registry database for at least a portion of the stored non-wellness and wellness data;
performing the search query according to search query rules;
determining whether a user's identity can be determined or inferred from the search query;
in accordance with a determination that a user's identity can be determined or inferred from the search query, rejecting the search query; and
in accordance with a determination that the search query is approved, transmitting results of the search query to the research entity.
7. The non-transitory computer-readable storage medium of claim 6 :
wherein the user's personal non-wellness data and the user's personal wellness data is received from a wellness database located on the at least one of a plurality of user devices.
8. The non-transitory computer-readable storage medium of claim 7 , further comprising instructions for:
updating the registry database by receiving one of intermittent and continuous updates from the wellness database located on the at least one of a plurality of user devices.
9. The non-transitory computer-readable storage medium of claim 6 , wherein the registry database comprises metadata associated with the wellness and the non-wellness data, wherein the metadata comprises a time the wellness and the non-wellness data was recorded, a type of the wellness and the non-wellness data, and a device used to record the wellness and the non-wellness data.
10. The non-transitory computer-readable storage medium of claim 6 wherein the wellness and the non-wellness data is stored in the registry database anonymously.
11. An electronic device, comprising:
one or more processors;
a memory; and
computer-executable instructions, wherein the computer-executable instructions are stored in the memory and configured to be executed by the one or more processors, the computer-executable instructions including instructions for:
at a registry server independent of a research entity:
receiving the data sharing authorization from at least one of a plurality of user devices, wherein the data sharing authorization provides access to a user's personal non-wellness data and the user's personal wellness data collected by at least one of a user's smart phone or a user's wearable device, the data sharing authorization providing authorization to at least one research entity for accessing the user's personal non-wellness and the user's personal wellness data;
in response to receiving the data sharing authorization, receiving from at least one of the plurality of user devices, the user's personal non-wellness data and the user's personal wellness data;
storing the wellness and non-wellness data received from at least one of the plurality of user devices in a registry database;
receiving updates from at least one of the plurality of user devices to update at least one of non-wellness and the wellness data corresponding to the at least one of the plurality of user devices;
receiving from the at least one research entity, a request to access the registry database;
receiving, from the at least one research entity, a request to perform a search query on the registry database for at least a portion of the stored non-wellness and wellness data;
performing the search query according to search query rules;
determining whether a user's identity can be determined or inferred from the search query;
in accordance with a determination that a user's identity can be determined or inferred from the search query, rejecting the search query; and
in accordance with a determination that the search query is approved, transmitting results of the search query to the research entity.
12. The electronic device of claim 11 , wherein the user's personal non-wellness data and the user's personal wellness data is received from a wellness database located on the at least one of a plurality of user devices.
13. The electronic device of claim 12 , wherein the computer-executable instructions further include instructions for:
updating the registry database by receiving one of intermittent and continuous updates from the wellness database located on the at least one of a plurality of user devices.
14. The electronic device of claim 11 , wherein the registry database comprises metadata associated with the wellness and the non-wellness data, wherein the metadata comprises a time the wellness and the non-wellness data was recorded, a type of the wellness and the non-wellness data, and a device used to record the wellness and the non-wellness data.
15. The electronic device of claim 11 , wherein the wellness and the non-wellness data is stored in the registry database anonymously.